Question:

I’ve had plenty of exploratories tho my dear doc would say not.  And he always found the problem and went ’snip-snip’.  I take TPN every night but I’m on my last vein.  I just wanted to say that if you start with catheters, don’t let them screw around with your veins cause later on you may need them more.  I had an ER doc that just kept trying to stick me and I was going crazy demanding her to stop.  If I had known then what I know now…Now I have this one vein through my liver to my heart.  The TPN is a miracle for me and probably would help you.  Just make sure the doc that does the insertion knows what he’s doing.

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Well the saying used to be that there were 2 words that were needed to be spelled correctly in the NG.  One would be Crohn’s … well that’s obvious it’s in the name of the NG and the other one is diarrhea.  ;0)  If you spell them wrong you get 20 lashes with a wet noodle.  ;0) Hugs Pooh – Hide quoted text — Show quoted text – Spelling counts only in horse shoes  ; ) eMi

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Pooh, I know how to spell Crohns as it is right in front of me ….. but the other word always confuses me so thats why I just write the BIG "D" …. and you all know what I am talking about……. Maryjo check out my home page: http://community.webtv.net/MaryjoL/MYPAGE

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and the other one is diarrhea.  ;0)  If you spell them wrong you get 20 lashes with a wet noodle.  ;0)

Pooh I am sorry but I like my spelling better  dire rear. Eileen from KY

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LOL Eileen … yeah so do i. Hugs Pooh – Hide quoted text — Show quoted text – and the other one is diarrhea.  ;0)  If you spell them wrong you get 20 lashes with a wet noodle.  ;0) Pooh I am sorry but I like my spelling better  dire rear. Eileen from KY

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I am sorry but I like my spelling better  dire rear.

Eileen, I LOVE it!  I’m gonna remember that one!  Mind if I use it on occassion?  It even sounds better than "The Big D"!!! Love,   Margie  <=)

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it could very well be gastritis/duodenitis from nsaid ingestion. maybe you should get it scoped? i’ve never had an obstruction so i can’t set a good comparison for pain, but the duodenitis experience was the most painful gut pain i’ve ever had. in the er they were convinced i had a kidney infection (i had referred pain to my back) and after they got over that they thought it was pancreatitis because my blood work showed wacky levels of digestive enzymes or something. the only way i could get any sleep was when they gave me demerol.. so yes, it was terribly painful! did they say the first small bowel series was negative or non-conclusive? i can’t say i really understand how they make that distinction… maybe you should have it scoped….. i hope the experience ends very soon.. nadia. – Hide quoted text — Show quoted text – Nadia, Thanks for your response. I feel like my whole gut is inflamed and on fire. Someone suggested maybe gastritis, duodenitis from NSAID ingestion for menstrual cramps. I am pooping so not obstructed but the pain is so intense I can’t sleep. I was prescribed T #3 and this only takes some of the pain away. I am having to take it every four hours and just can’t sleep. If the pain doesn’t get better I am going to ask for stronger meds and something to help me sleep. Can gastritis and duodenitis really be this painful? God it hurts. Interesting that your second opinion was + for inflammation. Maybe I should have them re-read. Thanks for your post and I hope you get this to respond again. Painfully Yours, Mary

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that is one hard word to remember… and sorry I get so confused lately … <g I wonder why??? Maryjo check out my home page: http://community.webtv.net/MaryjoL/MYPAGE

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LOL Maryjo ….  hell i don’t know how to spell it either without looking it up …. that’s why i always use the Big "d" also.  ;0) Don’t want them thar 20 lashes. <VBG Hugs Pooh – Hide quoted text — Show quoted text – Pooh, I know how to spell Crohns as it is right in front of me ….. but the other word always confuses me so thats why I just write the BIG "D" …. and you all know what I am talking about……. Maryjo check out my home page: http://community.webtv.net/MaryjoL/MYPAGE

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Spelling counts only in horse shoes  ; ) eMi

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:-P — DAWN/Bonnie Thomas wrote – Hide quoted text — Show quoted text – weel u kep triing and things weel wrk out four u :-P

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Bonnie, you should be able to add the words to your spell checker so it doesn’t change them on you next time you type them. Only problem is you need to keep a drug handbook and dictionary nearby so you can enter them with the proper spelling. I thought computers were supposed to make things easier. Cathy – Hide quoted text — Show quoted text – LOL   Only if you ask your doctor for a Rx for prolific. I am finding it increasingly annoying to keep having to click ‘ignore’ when I try to send out my email.  I would turn off the spell check but no one would know what I was trying to say…and some of these meds cause my fingers to wander all over my key board.  If I want to say ‘crohns’ it want’s to say ‘crowns’ if I say ‘meds’ it wants ‘Medusa’….and you should see what it wants to use in place of some of your email names.  LOL — DAWN/Bonnie http://millennium.fortunecity.com/hibiscus/721/      personal homepage http://www.geocities.com/Hollywood/Set/1304/corrigan.htm     click on " Honor Role" and look for me as Bonnie Chandler Thomas L. Stewart wrote You mean spelling counts????? well crappe LOL

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LOL   Only if you ask your doctor for a Rx for prolific. I am finding it increasingly annoying to keep having to click ‘ignore’ when I try to send out my email.  I would turn off the spell check but no one would know what I was trying to say…and some of these meds cause my fingers to wander all over my key board.  If I want to say ‘crohns’ it want’s to say ‘crowns’ if I say ‘meds’ it wants ‘Medusa’….and you should see what it wants to use in place of some of your email names.  LOL — DAWN/Bonnie http://millennium.fortunecity.com/hibiscus/721/      personal homepage http://www.geocities.com/Hollywood/Set/1304/corrigan.htm     click on " Honor Role" and look for me as Bonnie Chandler Thomas L. Stewart wrote – Hide quoted text — Show quoted text – You mean spelling counts????? well crappe LOL

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weel u kep triing and things weel wrk out four u :-P – Hide quoted text — Show quoted text – LOL   Only if you ask your doctor for a Rx for prolific. I am finding it increasingly annoying to keep having to click ‘ignore’ when I try to send out my email.  I would turn off the spell check but no one would know what I was trying to say…and some of these meds cause my fingers to wander all over my key board.  If I want to say ‘crohns’ it want’s to say ‘crowns’ if I say ‘meds’ it wants ‘Medusa’….and you should see what it wants to use in place of some of your email names.  LOL — DAWN/Bonnie http://millennium.fortunecity.com/hibiscus/721/      personal homepage http://www.geocities.com/Hollywood/Set/1304/corrigan.htm     click on " Honor Role" and look for me as Bonnie Chandler Thomas L. Stewart wrote You mean spelling counts????? well crappe LOL

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I was just put on Prolific for these symptoms and the added symptom of heart burn. — DAWN/Bonnie

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Sorry, just notice my spell checker changed Prilosec to prolific.  LOL Does anyone know of a spell check software where you can use medical terminology, add abbreviations, and use foreign words? — DAWN/Bonnie http://millennium.fortunecity.com/hibiscus/721/      personal homepage http://www.geocities.com/Hollywood/Set/1304/corrigan.htm     click on " Honor Role" and look for me as Bonnie Chandler

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You mean spelling counts????? well crappe LOL – Hide quoted text — Show quoted text – Sorry, just notice my spell checker changed Prilosec to prolific.  LOL Does anyone know of a spell check software where you can use medical terminology, add abbreviations, and use foreign words? — DAWN/Bonnie http://millennium.fortunecity.com/hibiscus/721/      personal homepage http://www.geocities.com/Hollywood/Set/1304/corrigan.htm     click on " Honor Role" and look for me as Bonnie Chandler

Response:

Nadia, Thanks for your response. I feel like my whole gut is inflamed and on fire. Someone suggested maybe gastritis, duodenitis from NSAID ingestion for menstrual cramps. I am pooping so not obstructed but the pain is so intense I can’t sleep. I was prescribed T #3 and this only takes some of the pain away. I am having to take it every four hours and just can’t sleep. If the pain doesn’t get better I am going to ask for stronger meds and something to help me sleep. Can gastritis and duodenitis really be this painful? God it hurts. Interesting that your second opinion was + for inflammation. Maybe I should have them re-read. Thanks for your post and I hope you get this to respond again. Painfully Yours, Mary

Response:

how frustrating! can you tell which part of the gut the pain if coming from? if it’s somewhere scope-able then perhaps you should go that route? a few years ago when my duodenum was inflammed in a similar time frame i lost the ability to ingest water pain-free and like you ended up in the er.. can you get a second opinion on the small bowel series? if this doesnt resolve itself soon (set a dealine, say, wednesday) perhaps you should go on tpn or else you’ll become very weak from the experience, and if it is in fact a blockage and you need surgery then you’ll be in bad shape for it. i think the first opinion on my small bowel series was non-conclusive but the second radiologist (or whoever reads them) said duodenitis. this sounds quite trivial: they put me on iv acid blockers (like pepcid) and 3 days later i was eating mushy, but solid food again! i’m not suggesting that anyone else could have such a ridiculously simple outcome, but what a difference a second opinion makes… good luck, and hang in there. nadia. – Hide quoted text — Show quoted text – Hi All, Thanks for reading. I have had CD since 1990. I have had three bowel resections. Prednisone, Pentasa and Asocal etc. have never worked for me. I have always ended up with a bowel resection. My current situation is that I have been healthy for 4 years (relatively) until 12 days ago when I developed obstructive type discomfort and feelings after a regular meal. I decreased my diet to low residue with no relief and eventually ended up on full liquid then clears. I was tolerating that well and after a few days tried to advance my diet to full liquids again and tolerated that well. I then after a few days tried to advance to low residual which resulted in severe abdominal pain. So I went back to clears. I ended up in the ER but my xray was negative for an obstruction. Today my surgeon ordered an Upper GI which also turned up negative. I have never had diarrhea (with this flare up). Symptoms nausea, bloating and abdominal pain. I am waiting for a call from my surgeon right now.  I am tolerating nutrition shakes, water and juice with only mild discomfort. Still no diarrhea. I’m tired from lack of nutrition (I think that’s part of it). What do you guys think? Would you go on TPN (I’ve had to in the past). Do you think it would be unreasonable for my surgeon to go in (my gut) and "look" to see what is going on? He hasn’t talked to me about either of these but I am going to ask him. I just want to know what you all think. Thanks you guys for being there. Mary

Response:

Hi All, Thanks for reading. I have had CD since 1990. I have had three bowel resections. Prednisone, Pentasa and Asocal etc. have never worked for me. I have always ended up with a bowel resection. My current situation is that I have been healthy for 4 years (relatively) until 12 days ago when I developed obstructive type discomfort and feelings after a regular meal. I decreased my diet to low residue with no relief and eventually ended up on full liquid then clears. I was tolerating that well and after a few days tried to advance my diet to full liquids again and tolerated that well. I then after a few days tried to advance to low residual which resulted in severe abdominal pain. So I went back to clears. I ended up in the ER but my xray was negative for an obstruction. Today my surgeon ordered an Upper GI which also turned up negative. I have never had diarrhea (with this flare up). Symptoms nausea, bloating and abdominal pain. I am waiting for a call from my surgeon right now.  I am tolerating nutrition shakes, water and juice with only mild discomfort. Still no diarrhea. I’m tired from lack of nutrition (I think that’s part of it). What do you guys think? Would you go on TPN (I’ve had to in the past). Do you think it would be unreasonable for my surgeon to go in (my gut) and "look" to see what is going on? He hasn’t talked to me about either of these but I am going to ask him. I just want to know what you all think. Thanks you guys for being there. Mary

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Hi Mary: So sorry to hear about your gut! I have UC so I’m not really familiar with obstructions, but I am wondering if there are any other diagnostic tests your doctor can do without surgery? I think the TPN and/or liquids makes sense at least until you figure out what it is. That way you won’t be doing any more damage. Good luck and please keep us posted. I hope some others with CD will be able to give you some other suggestions. Rebecca :-) – Hide quoted text — Show quoted text – Hi All, Thanks for reading. I have had CD since 1990. I have had three bowel resections. Prednisone, Pentasa and Asocal etc. have never worked for me. I have always ended up with a bowel resection. My current situation is that I have been healthy for 4 years (relatively) until 12 days ago when I developed obstructive type discomfort and feelings after a regular meal. I decreased my diet to low residue with no relief and eventually ended up on full liquid then clears. I was tolerating that well and after a few days tried to advance my diet to full liquids again and tolerated that well. I then after a few days tried to advance to low residual which resulted in severe abdominal pain. So I went back to clears. I ended up in the ER but my xray was negative for an obstruction. Today my surgeon ordered an Upper GI which also turned up negative. I have never had diarrhea (with this flare up). Symptoms nausea, bloating and abdominal pain. I am waiting for a call from my surgeon right now.  I am tolerating nutrition shakes, water and juice with only mild discomfort. Still no diarrhea. I’m tired from lack of nutrition (I think that’s part of it). What do you guys think? Would you go on TPN (I’ve had to in the past). Do you think it would be unreasonable for my surgeon to go in (my gut) and "look" to see what is going on? He hasn’t talked to me about either of these but I am going to ask him. I just want to know what you all think. Thanks you guys for being there. Mary

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