Question:

This has been a long road for me , some days it seems too much to bear alone, but I know I have to hang on if Im going to make it through this…

Holly,    Yes, this is toooooo terrible a disease to go through alone, that is why we are here for you, anytime!!!!  This a terrific group of women, caring, supportive, lots of knowledge, etc.     Also, lortab has been my best friend for about 10 months, now.  :)  Ultram didn’t work for me, and even percocet doesn’t hit that "female" pain, like the lortab does.  I am hoping that in Jan, when I get my lap, that I can say goodbye to the lortab for awhile, and have a better quality of life. <G    My other  and most important source is my higher power which I call God(and Jesus).  I KNOW I would have given in to despair and hopelessness if I didn’t have that relation- ship!!!  And He has blessed me time and again.  <G    I would be glad to correspond with you, hon.  Feel free to email me anytime, for whatever reason, even just to ‘chat’. We can never have too many friends.  <G Take Care, SherryK

Response:

This is just a condensed version of my experience with endo. Some things Ive learned and maybe something here could help some one. Ive had endo for almost 2 years. Im 33, married, no kids. So for Ive had a laser lap, BCP, Lupron shots, Synaral, an anti depressant "Nortriptaline" and a countless quantity of loritab pain pills. Fortunatly I have a sympathetic family physision who helped with the pain management but knows little about endo. Ive been to 3 OB/ GYN and unfortunately also know little about endo and are not only unsympathetitc but basicly tell me "I shouldnt Hurt " or "Its in my head" or "You should be well by now". One good thing ive found…the local pain management clinic not only believes me but have offered alternative methods of pain control in addition to an adequete supply of pain pills. Since my family Dr. was getting nervous about the pain pills he does not have to worry about that now. Im sure I will eventually get the Dr Redwine surgery but in the mean time here is a list of what has helped and what did not. This is just my personal experience , everyone is different,   hot baths   walking or treadmill exersize   good balanced diet   enough sleep every night   emotional support from friends family or anyone else   anything that makes me feel good. personally I like soft music, gardening reading, "feel good" movies,visiting people that make me feel good, and of course candy!   belief in a higher power, God, Supreme Being, prayer   Loritab or Vicodin or Percocet. NO IM NOT addicted and if you have pain the chances of getting addicted are less than 1/1000. This is documented fact. Opioid pain pills have saved me from countless hours of agony. If your  MD does not believe you….get another !   Love yourself and realize what you have is not your fault. No one knows for sure what causes endo but it is probably genetic in origin and can be triggered by hormonal changes , stress , or possibly chemicals in the envioronment .   TENS ( transdermal electro stimulation ) An electronic gizmo the pain clinic gave me that I wear around during the day that actualy helps the pain.   Find a way to deal with stress…stress agravates pain….mellow out any way you can. WHAT HASNT WORKED……   Laser Lap   Synaral   Lupron   Birth Control Pills  Although these drugs have stopped my periods which were hell ….I still have Endo and still hurt and these all have significant side effects including mood swings, bloating with abdominal pain, hot flashes, flu like body aches, extreme nausea, vaginal shrinkage and dryness,   Nortriptaline.  This is an old type anti depressant that my former OG/GYN said would help the pain. DONT EVEN THINK of taking this crap if it is offered to you! Find another Doctor ! I cant describe the mind altering roller coaster-depth -of-hell-fire-suicidal -state-of-mind that this stuff did to me. Ultram. Overpriced,Overhyped,Underpowered pain pill I would love to correspond with any one with Endo .This has been a long road for me , some days it seems too much to bear alone, but I know I have to hang on if Im going to make it through this… Holly

Response:

Holly, I have felt so alone in this I have no family near except my brother to help. They all live in michigan and I live in northern calif. The few friends I have cannot understand what Im going through

I also live in Northern CA – Bay Area.  I am also alone out here without any  family.  I am also from the Midwest.  I have had endo for 18 years, am very  sick right now and desperately would like to find out more about Dr Redwine.  Please e-mail me if you need some support.  You are in my thoughts and  prayers! Jill  

Response:

Dear Sherry,    Thank you so much for responding to me. I have felt so alone in this although i have a wonderfull husband. I have no family near except my brother to help. They all live in michigan and I live in northern calif. The few friends I have cannot understand what Im going through. I would like to have a baby and go back to work full tine. In a few months Im going to see Dr. Redwine in hopes of getting well Please let me know about your lap. Make sure you get a dr. who can recognize all the differt types of leisions and remove them all. They missed some on my first lap this is why I still hurt. Thanks for listening to me. I belive in Jesus Christ and pray every day for all the women who have endo.I look to Christ for my strenth. Ill talk to you soon                               Sincerly    Holly

Response:

Holly, HI im glad you have found us. I agree with your opinion about ultram. I have tried it and felt no effect what so ever.You are welcome to email me anytime you feel like talking to someone who understands. Im glad you have good pain management. It must be wonderful. Good luck to you and i look forward to hearing from you.   Sherry

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