Question:

On Tue, 19 Dec 2000 09:56:03 -0800, "Canuckian" <canuck…@freeze.com> wrote: > The pain has eased this morning and is just fleeting now and >then but it worries me. Can anyone tell me if they’ve experienced this and >if they found out what caused it please? >catherine

I’d recommend that you get it checked out ASAP, Catherine.  I am not an expert on kidney stuff but I have known folks who had significant pain in response to various kidney problems. You haven’t changed a med in the last day or two have you?  I found a strange side effect (rare) from Sonata – it gave me major kidney pain but didn’t do any harm beyond that (go figure).  anyway… check it out.  It may be nothing. It may be not enough fluids (I get mild flank pain when I don’t get enough water) or it could be a problem developing.  Yeah, *most* people don’t experience pain with kidney involvement according to the party line – but most is of course, not "all".   Best wishes and good to see you post.  You are with family here. hugs, *********************************** KCat – I am not a medical professional.  The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm   ("`-”-/").___..–”"`-._   (`6_ 6  )   `-.  (     ).`-.__.’`)    (_Y_.)’  ._   )  `._ `. “-..-”   _..`–’_..-_/  /–’_.’ ,’ (()),-”  (()),’    (((.-’

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Well , Im sure that everyone on here will agree that what books say and what really happens , are not always the same! I have also had problems with my kidneys over the years. You need to go to your Dr for blood tests! It may be an infection or kidney stone? All I know is that I HAVE had pain in my kidneys (even though the books say your not suppose to) Are you running a higher fever that usual? The Dr may also do an IVP if the blood work doesnt show much so he can get a better look at your kidneys (they inject dye  into you and take x-rays of your kdneys) good luck! Karen

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Thanks all of you:) I had it checked yesterday. Tis the lupus the doc says and increase my prednisone. Just what I needed, a pumpkin costume for new years. So much for what the books say, it hurts and if I sit so my back touches the chair it feels like I’m leaning on a little poofy pillow in that area. And it *really* hurts if the area is tapped firmly. My doc did that and I nearly decked him:) He suggested also trying to drink water as constantly as I can. That doesn’t compute to me, wouldn’t that just make the poor lil things work even harder? Actually it worked out kind of handy because he had just received the results of my last battery of tests from last week and my ANA had literally doubled from last time. Isn’t that kind of unusual? I thought most of us sort of sat at a more or less static ANA (like say between 160 and 640) apart from say a life threatening flare. I’m sooooo glad I found these groups online. How did I ever manage the fear before I found you. love, catherine Canuckian <canuck…@freeze.com> wrote in message

news:cjN%5.9635$[email protected]… – Hide quoted text — Show quoted text -> Hello:) > I don’t post often but I read every post every day and feel I’m getting to > know some of you. I have a question. Last night, for about two hours in the > middle of the night I had a sharp throbbing pain in my back. it was to my > left side just below my rib cage. I think I’ve read before if there is > kidney involvement in Lupus that there is no pain associated with that > inflammation. The pain has eased this morning and is just fleeting now and > then but it worries me. Can anyone tell me if they’ve experienced this and > if they found out what caused it please? > catherine

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On Wed, 20 Dec 2000 17:10:23 -0800, "Canuckian" <canuck…@freeze.com> wrote: >Actually it worked out kind of handy because he had just received the >results of my last battery of tests from last week and my ANA had literally >doubled from last time. Isn’t that kind of unusual? I thought most of us >sort of sat at a more or less static ANA (like say between 160 and 640) >apart from say a life threatening flare.

A doubled ANA is actually only one step different, so not as drastic as it looks! They do the test by taking a bit of your blood, diluting it and treating it to make the antibodies visible, then testing it till they can’t see the antibodies any more. They start at a 1 part in 40 concentration (1:40) then double the dilution with each step, so 1:320 is only one step up from 1:160, and 1:640 one step up from 1:320. My reading varies from 1:320 to "1:640+" (whatever that means) depending on the lab and the time; there doesn’t seem to be much relationship between that and my illness (I should add I don’t actually have a lupus diagnosis, just some of the symptoms :-) ). Suzanne * – * – * – * – * – * – * – * – * – * – * – * – *  Suzanne Doig – remove *!* from reply-to address          http://www.geocities.com/smdnz/

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Also…ANA doesn’t correlate well with lupus severity or flares.  There are a lot better indicators (for example: complements, anti-dsDNA, sed rate, CRP) Sandra

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On Wed, 20 Dec 2000 17:10:23 -0800, "Canuckian" <canuck…@freeze.com> wrote: >Thanks all of you:) I had it checked yesterday. Tis the lupus the doc says >and increase my prednisone. Just what I needed, a pumpkin costume for new >years. So much for what the books say, it hurts and if I sit so my back >touches the chair it feels like I’m leaning on a little poofy pillow in that >area. And it *really* hurts if the area is tapped firmly. My doc did that >and I nearly decked him:) He suggested also trying to drink water as >constantly as I can. That doesn’t compute to me, wouldn’t that just make the >poor lil things work even harder?

no.. not in general.  The kidneys require the right balance of salts, proteins and sugars to function properly.  Too little fluids can cause a build-up of these things and make the body interpret this as drought conditions therefore it starts storing water, in the skin, everywhere. Too much protein is one of these triggers (which is what usually happens in lupus) therefore you need to dilute the proteins to get things functioning normally again.  There are exceptions to this rule (when the kidneys are on their last legs so to speak) but otherwise, you need to be getting water all day and preferably once or twice during the night if you awaken as I do. >apart from say a life threatening flare. I’m sooooo glad I found these >groups online. How did I ever manage the fear before I found you.

other folks have already answered this so I’ll just echo – ANA can vary tremendously over time – even from one day to the next, hence the necessity of getting it checked regularly to monitor disease activity. However, as Sandra and others remind us, ANA levels do not really indicate *severity* of the disease and at times the ANA can be low in a flare or high in a non-flare.  So it’s not unusual for you to experience a doubling or more.  And as Susan pointed out a doubling (320 to 640) is only one "dilution" on the ANA assay. glad you’re here too!  though I wish you didn’t have to be if you know what I mean. hugs, *********************************** KCat – I am not a medical professional.  The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm   ("`-”-/").___..–”"`-._   (`6_ 6  )   `-.  (     ).`-.__.’`)    (_Y_.)’  ._   )  `._ `. “-..-”   _..`–’_..-_/  /–’_.’ ,’ (()),-”  (()),’    (((.-’

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Based on your description, I believe I have experienced a similar pain, on and off for approximately 7 years. I also get the same type of pain around my spleen area. I went to my GP about it and he said something about pressure from my ribs or something.  Truthfully, I didn’t really pay attention to him becuase the pain wasn’t there at the time. I went to emergency once and was stuck with a bunch of needles in my back with freezing.  Needless to say, the pain went away.  (They’re brilliant), but no diagnosis was found. Thank you for the reminder, I have to ask my Rheumatologist about it.  I forget sometimes, because it only happens every few months. Is your pain like a gas pain?  What I mean is, do you feel pressure? Canuckian <canuck…@freeze.com> wrote in message

news:cjN%5.9635$[email protected]… – Hide quoted text — Show quoted text -> Hello:) > I don’t post often but I read every post every day and feel I’m getting to > know some of you. I have a question. Last night, for about two hours in the > middle of the night I had a sharp throbbing pain in my back. it was to my > left side just below my rib cage. I think I’ve read before if there is > kidney involvement in Lupus that there is no pain associated with that > inflammation. The pain has eased this morning and is just fleeting now and > then but it worries me. Can anyone tell me if they’ve experienced this and > if they found out what caused it please? > catherine

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Hi Lisa I don’t feel any pressure it’s just sort of a wavy throbbing if that makes any sense :) catherine Lisa <purs…@hotmail.com> wrote in message

news:a3C26.33066$[email protected]… – Hide quoted text — Show quoted text -> Based on your description, I believe I have experienced a similar pain, on > and off for approximately 7 years. > I also get the same type of pain around my spleen area. > I went to my GP about it and he said something about pressure from my ribs > or something.  Truthfully, I didn’t really pay attention to him > becuase the pain wasn’t there at the time. > I went to emergency once and was stuck with a bunch of needles in my back > with freezing.  Needless to say, the pain went away.  (They’re brilliant), > but no diagnosis was found. > Thank you for the reminder, I have to ask my Rheumatologist about it.  I > forget sometimes, because it only happens every few months. > Is your pain like a gas pain?  What I mean is, do you feel pressure? > Canuckian <canuck…@freeze.com> wrote in message > news:cjN%5.9635$[email protected]… > > Hello:) > > I don’t post often but I read every post every day and feel I’m getting to > > know some of you. I have a question. Last night, for about two hours in > the > > middle of the night I had a sharp throbbing pain in my back. it was to my > > left side just below my rib cage. I think I’ve read before if there is > > kidney involvement in Lupus that there is no pain associated with that > > inflammation. The pain has eased this morning and is just fleeting now and > > then but it worries me. Can anyone tell me if they’ve experienced this and > > if they found out what caused it please? > > catherine

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Hello:) I don’t post often but I read every post every day and feel I’m getting to know some of you. I have a question. Last night, for about two hours in the middle of the night I had a sharp throbbing pain in my back. it was to my left side just below my rib cage. I think I’ve read before if there is kidney involvement in Lupus that there is no pain associated with that inflammation. The pain has eased this morning and is just fleeting now and then but it worries me. Can anyone tell me if they’ve experienced this and if they found out what caused it please? catherine

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- Hide quoted text — Show quoted text ->Hello:) >I don’t post often but I read every post every day and feel I’m getting to >know some of you. I have a question. Last night, for about two hours in the >middle of the night I had a sharp throbbing pain in my back. it was to my >left side just below my rib cage. I think I’ve read before if there is >kidney involvement in Lupus that there is no pain associated with that >inflammation. The pain has eased this morning and is just fleeting now and >then but it worries me. Can anyone tell me if they’ve experienced this and >if they found out what caused it please? >catherine >I’ve read before if there is >kidney involvement in Lupus that there is no pain associated with that >inflammation.

Gee I wish !! Iv had renal disease & SLE since 1985 an have pain. my kidneys are 60% scared over from inflamation & the disease SLE caused, I had 3 failures & 5 biopsys now on kidneys. please get blood tests done to determan cause of the pain. I wish you the best & hope you dont have kidney involvement. Hugs- Tina *************************************************** Just my opinion <grin> Tina (my site under construction)

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