Question:

I agree with you! My shoulder pain is definitely lupus related inflammation and it hurts! Lupus can affect any joint and in my case it chooses the shoulders, wrists and knees especially… good luck with dealing with your pain! I find rest and light duties only makes a difference. …… my 2 cents too, fwiw, from Shelagh "Terriceabecassis" <terriceabecas…@cs.com> wrote in message

news:20040301235644.22770.00000606@mb-m10.news.cs.com… | Hi my name is Terrice. I’ve only posted one other time here. But I wanted to | add my two cents, I have had shoulder problems ( especially right)  But | whenever I’m having a flare it sure does hurt alot more.  It seems there are a | lot of us lupies complaning about shoulder problems for it not to be related in | some way.  I had a CAT scan of my spine to make sure it was not refered pain, | it wasn’t. | | just my two cents | | Terrrice

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About 10days ago, I had an ultrasound guided steroid injection. I got immediate pain relief to the local shoulder area and it’s still holding. Yippee ! I no longer have severe pain with me 24/7 in that area. (however it has not been "road tested" yet..carrying, shovelling, lifting etc)..so I’m "guarded" I still can’t raise my arm without pain. :( Now I’m waiting on a phone call to find out if I can have same for the right shoulder and when. My followup on the first is sometime in May. I sure hope they won’t make me wait that long before they decide if they’ll do the right shoulder. We shall see. That’s one of my CGT’s :-) J

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I am glad to hear that the worst of the pain is gone, J. Let’s hope that our Canadian winter does not put your shoulders to the test with lots of snow shovelling. I would far sooner be shovelling rain. <g> Can’t wait for spring. The end of April isn’t that far away. Is it? BJ-Sk. Canada "J" <Morphol…@example.org> wrote in message

news:402F5B4B.B07AC9A4@execulink.com… – Hide quoted text — Show quoted text -> About 10days ago, I had an ultrasound guided steroid injection. > I got immediate pain relief to the local shoulder area and it’s still > holding. > Yippee ! I no longer have severe pain with me 24/7 in that area. > (however it has not been "road tested" yet..carrying, shovelling, > lifting etc)..so I’m "guarded" > I still can’t raise my arm without pain. :( > Now I’m waiting on a phone call to find out if I can have same for the > right shoulder and when. > My followup on the first is sometime in May. I sure hope they won’t make > me wait that long before they decide if they’ll do the right shoulder. > We shall see. > That’s one of my CGT’s :-) > J

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That’s great news J!  I want one! : ) I didn’t know they did that until you mentioned it the other day. I just thought you got to choose which hip, at the very most. I hope you can get the other shoulder done soon.  And I echo BJ’s sentiments;  Let’s hope you don’t have to test it on any snow shoveling! Hugs, Maggie

Response:

In article <402F5B4B.B07AC…@execulink.com>,  J <Morphol…@example.org> wrote: > About 10days ago, I had an ultrasound guided steroid injection. > I got immediate pain relief to the local shoulder area and it’s still > holding.

That’s great! > Yippee ! I no longer have severe pain with me 24/7 in that area. > (however it has not been "road tested" yet..carrying, shovelling, > lifting etc)..so I’m "guarded"

Wait a bit for the ‘road test,’ okay? > I still can’t raise my arm without pain. :(

I hope that improves soon. Real soon! — "Did Father shoot him? I will eat Grandfather for dinner." – Helen Keller, on learning of the death of her grandfather

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"J" <Morphol…@example.org> skrev i meddelandet news:402F5B4B.B07AC9A4@execulink.com… > About 10days ago, I had an ultrasound guided steroid injection. > I got immediate pain relief to the local shoulder area and it’s still > holding. > Yippee ! I no longer have severe pain with me 24/7 in that area. > (however it has not been "road tested" yet..carrying, shovelling, > lifting etc)..so I’m "guarded" > I still can’t raise my arm without pain. :(

Sounds good! Cortisone injections are wonderful if they hit right, and no systemic side effects unless you flap around with the injected joint during the first 1- 2 days. I’d rather have 15 shots into the joints than oral pred. I recently had 4 in my hips and SI:s, although without ultrasound. My RD is great at injecting joints without ultrasound, but a couple of weeks ago it was an article in the newspaper about some moron psychiatrist (?) who had punctured a patient’s lung when giving a steroid injection into the shoulder. > Now I’m waiting on a phone call to find out if I can have same for the > right shoulder and when.

Don’t know if you are at a rheumatology department, but they should have set aside some time every week – two weeks for cortisone injections. Such stuff is often urgent, so it’s crazy to have to wait several months. Nina

Response:

NW wrote: >  I recently had 4 in my hips and SI:s,

all at the same time? They’ll only do one every 3 months here. Or the doctor I’ve had did. > although without ultrasound. My > RD is great at injecting joints without ultrasound, but a couple of weeks > ago it was an article in the newspaper about some moron psychiatrist (?) who > had punctured a patient’s lung when giving a steroid injection into the > shoulder. > > Now I’m waiting on a phone call to find out if I can have same for the > > right shoulder and when. > Don’t know if you are at a rheumatology department, but they should have set > aside some time every week – two weeks for cortisone injections. Such stuff > is often urgent, so it’s crazy to have to wait several months.

No acesss to rheumatologist, only saw one once in 1998 who dx’d the whole mess "fibromyalgia". This is Ontario, Canada.  (like it or not, that’s the best the system can do). J

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"J" <TheVanGu…@example.net> skrev i meddelandet news:40311981.57B1E1C2@execulink.com… > NW wrote: > >  I recently had 4 in my hips and SI:s, > all at the same time? They’ll only do one every 3 months here. Or the >doctor I’ve had did.

One in the left SI, one in the right SI, one in the left hip and one in the right hip. I did the left side first and the right side some week after that. We have the 3 month-rule in Sweden too. Nina

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J, I have been having pain mostly in my left shoulder, but at times in both for many months now.  I haven’t seen anywhere that this could be related to lupus until I now read your post.  If I may ask: would you tell me more about the shoulder problem you have?  Is is related to lupus?  If so, how? Is it a common symptom?  And anything else you can think of that may enlighten me? Thank you, Chuck "J" <Morphol…@example.org> wrote in message

news:402F5B4B.B07AC9A4@execulink.com… – Hide quoted text — Show quoted text -> About 10days ago, I had an ultrasound guided steroid injection. > I got immediate pain relief to the local shoulder area and it’s still > holding. > Yippee ! I no longer have severe pain with me 24/7 in that area. > (however it has not been "road tested" yet..carrying, shovelling, > lifting etc)..so I’m "guarded" > I still can’t raise my arm without pain. :( > Now I’m waiting on a phone call to find out if I can have same for the > right shoulder and when. > My followup on the first is sometime in May. I sure hope they won’t make > me wait that long before they decide if they’ll do the right shoulder. > We shall see. > That’s one of my CGT’s :-) > J

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chuck wrote: > J, > I have been having pain mostly in my left shoulder, but at times in both for > many months now.  I haven’t seen anywhere that this could be related to > lupus until I now read your post.  If I may ask: would you tell me more > about the shoulder problem you have?  Is is related to lupus?  If so, how? > Is it a common symptom?  And anything else you can think of that may > enlighten me? > Thank you, > Chuck

Hi Chuck, I’m sorry to hear about your shoulder problems. No, mine’s not related to Lupus at all. Mine was thought to be fibromyalgia, but, years later, after they scanned with ultrasound this is what they said "Findings: Rotator Cuff: supraspinatus shows mild deterogeneity to the echogenicity of the tendon, consistent with tendinosis.  A similar finding is seen in subscapularis with small foci of associated calcification. Bone: Small amount of greater tuberosity enthesopathy. Acromioclavicular joint: There is soft tissue and bony hypertrophy, consistent with OA. Opinion: Supraspinatus tendinosis and subscapularis calcific tendinosis with greater tuberosity enthesopathy.  Acromioclavicular joint OA. What it causes is pain when trying to sleep, pain when raising my arms (almost "frozen shoulder like"), pain carrying, lifting, getting into tight corners and trying to twist around (like trying to fix something under a kitchen counter or repetitive motion (like sweeping or sanding). Apparently OA (osteoarthritis) is a "wear and tear" arrthitis.  I guess I overdid (over my lifetime), because as far as I know, none of my siblings have the same problem. For 2 years I had steroid injection every 3 months/per shoulder but I guess her aim wasn’t good. The ultrsound guided injection helped some of the inflammation (which can’t be seen from the outside, it’s in the joint)  but I still don’t have "range of motion" (ie can’t move my shoulders around during normal use, without pain) and some angles I can’t raise them above shoulder height. Pills don’t do it and/or I’d have to take so many of various types, I’d ruin my gastro.   I also use heat (bath, hot water bottle), then cold sometimes to help things along, Mine’s complicated by the fact that I had "dry pleurisy" (no fluids) 3 times within a few months and the pain referred along the nerve pathways down one side of the body and down the shoulder area out to the arms. I think I’m stuck with some nerve damage. I’ve read about so many possible causes of shoulder problems, ranging from "frozen shoulder" which is helped by exercise, to my type of problem, to heart problems, to gall bladder problems, even some cancers can refer pain to the shoulder (lung is one).     Anyhow, maybe you should have some tests there and rule some things out ? The most benign (meaning non-life threatening ) types of shoulder problems are mentioned here. http://www.nlm.nih.gov/medlineplus/shoulderinjuriesanddisorders.html  but I don’t believe in just assuming until some things are checked first. Let us know how it’s going. J

Response:

Hi Terrice, Thank you for posting. I would like to welcome you, and invite you to tell us more about yourself. We are always pleased to have new people join us here. BJ-Sk. Canada "Terriceabecassis" <terriceabecas…@cs.com> wrote in message

news:20040301235644.22770.00000606@mb-m10.news.cs.com… – Hide quoted text — Show quoted text -> Hi my name is Terrice. I’ve only posted one other time here.  But I wanted to > add my two cents, I have had shoulder problems ( especially right)  But > whenever I’m having a flare it sure does hurt alot more.  It seems there are a > lot of us lupies complaning about shoulder problems for it not to be related in > some way.  I had a CAT scan of my spine to make sure it was not refered pain, > it wasn’t. > just my two cents > Terrrice

Response:

Hi my name is Terrice. I’ve only posted one other time here.  But I wanted to add my two cents, I have had shoulder problems ( especially right)  But whenever I’m having a flare it sure does hurt alot more.  It seems there are a lot of us lupies complaning about shoulder problems for it not to be related in some way.  I had a CAT scan of my spine to make sure it was not refered pain, it wasn’t. just my two cents Terrrice

Response:

Terriceabecassis wrote: > Hi my name is Terrice. I’ve only posted one other time here.  But I wanted to > add my two cents, I have had shoulder problems ( especially right)  But > whenever I’m having a flare it sure does hurt alot more.  It seems there are a > lot of us lupies complaning about shoulder problems for it not to be related in > some way.  I had a CAT scan of my spine to make sure it was not refered pain, > it wasn’t. > just my two cents > Terrrice

Hi Terrice, I imagine any joint in the body can be involved in a flare, right? Your two cents counts here, post anytime. J

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"J" <WisdomPea…@example.com> wrote in message

news:40447789.37D88CD7@execulink.com… – Hide quoted text — Show quoted text -> Terriceabecassis wrote: > > Hi my name is Terrice. I’ve only posted one other time here.  But I wanted to > > add my two cents, I have had shoulder problems ( especially right)  But > > whenever I’m having a flare it sure does hurt alot more.  It seems there are a > > lot of us lupies complaning about shoulder problems for it not to be related in > > some way.  I had a CAT scan of my spine to make sure it was not refered pain, > > it wasn’t. > > just my two cents > > Terrrice > Hi Terrice, I imagine any joint in the body can be involved in a flare, right? > Your two cents counts here, post anytime. > J

I too have shoulder pain, very severe at the moment, due to flare, I had to visit the rheumy sister this morning, and finally got some pain relief, after her bullying the RD to find something that did not clash with my kidneys!!!

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Hi Chuck, I have had shoulder problems too. They are likely a separate issue from lupus. However, I have had inflammation in my right shoulder which showed up on a complete body CT that was done when I was in a major flare. At that time, so many joints were involved. I would say that the problem then, was lupus related. Usually, it seems to involve inflammation is wrists, knees and ankles. I believe that is the norm. BJ-Sk. Canada – Hide quoted text — Show quoted text -"chuck" <a…@b.com> wrote in message news:aFg0c.5615$3X2.1875@okepread04… > J, > I have been having pain mostly in my left shoulder, but at times in both for > many months now.  I haven’t seen anywhere that this could be related to > lupus until I now read your post.  If I may ask: would you tell me more > about the shoulder problem you have?  Is is related to lupus?  If so, how? > Is it a common symptom?  And anything else you can think of that may > enlighten me? > Thank you, > Chuck > "J" <Morphol…@example.org> wrote in message > news:402F5B4B.B07AC9A4@execulink.com… > > About 10days ago, I had an ultrasound guided steroid injection. > > I got immediate pain relief to the local shoulder area and it’s still > > holding. > > Yippee ! I no longer have severe pain with me 24/7 in that area. > > (however it has not been "road tested" yet..carrying, shovelling, > > lifting etc)..so I’m "guarded" > > I still can’t raise my arm without pain. :( > > Now I’m waiting on a phone call to find out if I can have same for the > > right shoulder and when. > > My followup on the first is sometime in May. I sure hope they won’t make > > me wait that long before they decide if they’ll do the right shoulder. > > We shall see. > > That’s one of my CGT’s :-) > > J

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